Moving forward with Cp

Ok so you have a child with Cp:

Or you are a young person with the condition. There will be lots of people who are older than you. These people have the best intention in the world and yet get things wrong particularly about your condition. These people may be members of your family but don’t understand the condition. They may think they don’t. You must realise this.

Comments they make:

• Close your legs.

• Come on hurry up!

• You can do better than that!

• Pick your feet up.

• Stand still.

These are just some of the ones I have encountered growing up. Even now decades later these confuse me.

You may wonder why I say that. You’ll see.

Growing up and feeling out of place!

Whether you are a single child/part of a bigger family that you live with. You are a member of the family who is reading this with another member with cerebral palsy. Take in mind what is said as it does not matter what people say. There is always a sense of being out of place because we are not classed as normal. There are signs of it in every part of life. This includes clothes, looks, dreams, work, movies,  how we eat and drink, how we speak. But the thing is we are the same as everyone else but parts of our body don’t work the way we want. That can be a real pain sometimes. I want to make sure that everyone understands that it is not always easy to do, what is expected of them because it is not part of their dream. it could be completely different to what is expected. 

What is normal?

What is the question of being normal? Because being normal mean nothing? As a human being. I would have thought being able to give some purpose to the world and each other was better than not being able to do anything or being criticised. Some people who think that being different is not ok are wrong. Wanting to be normal is is a perception and that means being yourself is not acceptable. There are options to be sure to show that being yourself is better than being what everyone else wants. Because it proves that you are what you are meant to be no matter what.   the whole system of being normal is also being portrayed too much on TV  and film because there are not people enough people should I say who are betraying people who are different and this is where the perception becomes the norm.

Growing up!

Personally, I had very much the perception of wanting to be normal but then questioning that whole thing because I was on my own a lot. I watched a lot of TV and films where sexism and racism were the norms and it is not in my eyes until I was older that it made me question myself because  I am different because of cerebral palsy. Growing up despite being an only child and was treated no different than everyone around me. I found it incredibly difficult because I thought I was normal and was able to do stuff but later found that actually, I couldn't. And that made things very difficult and depressive for me because of the feeling of inadequacy.

Trying to be a people pleaser and follow their example makes it very hard on yourself and I have learnt this myself. Now shows that actually being yourself is stronger than r following the Sheep in human Society as a whole. Although at times of medical interventions such as the pandemic right now it is best to follow the guidelines. however, it does not stop you from being yourself within the confines of society.

Teaching people that being different is ok!

Being yourself and showing that being different is out is ok and good for the environment and for Humanity shows that equality in the human race can be done. It may sound stupid but there are still people who perceive that different is not ok and it makes it harder for those of us who want our own dreams and goals to be heard very hard to actually be heard to get what we want within our life.

What next?

What Next? is the question that should be on everyone's mind right now but in every situation. However, cerebral palsy and other disabilities need to be shown that they are accepted and we are valued because whatever is said meant by family members and others make us feel that we're not. So what is next? They might even try and say that but they're trying to help but actually, they're not! The best thing for you to do is firmly but politely say sorry I can't do that. Because the more people learn about the condition and other conditions will be able to be more accepting of other people.

Final thoughts

My final thoughts on this would be to educate people and educate people continually until it is done. however, I don't think it will be at least in my time but hopefully, in my family's next generation. There is such a long way to go to make equality for everybody on this planet.

So We Are Coming Out The Other Side! Of this Pandemic!

We are coming out the other side! 

So it's coming to the end of 2021 and the world has been in the most horrific since the end of 2019 when the world first heard of COVID-19 and the global pandemic first started. I have spoken about this in various posts such as Is this going to be another groundhog year?

But is the new year ahead of going to be the same as the last 2? 

There was a comment made about previous pandemics that I realised was a good observation and that the average time a pandemic lasts is 3 years. The most notable one is the Spanish flu which I mentioned in keeping your distance to stay safe. And that was from December 1918 to the middle of 1921 towards the end of the year.

Right now

Since beginning to write this post there is another variation of COVID-19 that was discovered in South Africa very recently so things have become more difficult again.

But changes are happening all the time so it can be a real struggle to know what to do for the best.

 What can everyone do for now?

The simplest thing people can do is follow the simple rules below.

• Wear a mask on public transport

• Wear a mask in shops and restaurants unless eating and drinking.

• In enclosed places that you don’t usually go wear a mask.

• Keep your interactions as minimal as possible. But do keep an eye on the elderly and those who are vulnerable.

• Staying at home as much as you can.

• Have the injections and boosters

• Carry hand sanitiser and use it 

Some people won’t follow these but they are putting everyone at risk. So unless there is a valid reason like some kind of medical or physical reason then masks should be worn.

Moving forward!

I mentioned before that in some places people are wearing masks for other reasons such as pollution. This is evident, particularly in Japan and China. Where the pollution is more noticeable. So following the simple rules will make it easier and quicker for things to go back to a similar way as before.

Hope for the future?

There is always hope for the future but this depends on everyone who can take action. It also depends on what actions everyone takes.

What does this mean for the exempt?

The following is what is meant for us who are exempt. 

• Stay home as much as possible.

• Have the injections that help everyone.

• Limit your interactions with others.

I get it that limiting your interactions can make you feel lonely but try to make a routine of seeing someone in your network every day. Even if you don’t touch the people you see it's important to be in touch with them. So that could be through:

• Texts

• Phone calls,

• Zoom or face calls.

• Meet up at an open space or garden. 

• Meet at a spacious place. This might be a cafe or coffee place with lots of space.

What ??

So we are all going to be doing indoors? those of us who are indoors more than others may not find as much difference but those who are could follow some of the ideas that I suggest in How are you coping in these strange times

But that is up to you and those around you. But remember that it's not just your life that is being affected by your decisions. It is everyone on the planet.

Final thoughts!

My final thoughts on this are that it is up to everyone to make an informed decision. I will be doing everything I can to ensure that everyone I love and know will be safe.

What does 2022 have for me?

What I think it has?

I think the new year has a lot of good things happening. Not everything is going to be what I wanted it to be. That's ok though just the same as 2021. 

There, as I said, have been lots of changes in the way things are regarding my disability. I think that the changes will be positive for the future to a certain degree. I'm hoping to have the final place, but it may not happen. We'll see. That's ok though because there is always going to be positive and negative. No matter what.

What do I want from 2022 ?

All I want is a way of being able to be safe and yet not stressed out too much. I know that this is going to be a difficult year ahead with the way that my family is going to have a head regarding their own situation such as GCSEs and a new place. We don't know what could actually be happening. We just have to take it month by month. 

So that means that we have to think about what is going on each month and make a small plan so that we have a monthly plan rather than a big goal for the entire year as something we can grasp on to. 

And that's what I think is going to be something that is going to help me as a person with anxiety. But it's also a lesson that I need to learn.

What I don't want from 2022?

I don't want to disabled person to be so stressed out that I'm panicking in a day-to-day situation for everything that has to be dealt with. 

I can manage if things are the occasional hiccup, but if there are lots of things that are causing issues then I will be full of anxiety and not wanting to do anything and instead wanting to hide so that is a negative side of 2022. Knowing what my disability holds in general makes it a lot harder at times to realise what we can do and what can happen and what help we have available.

What will I be doing in 2022?

I will be getting ready for the new home sorting things out to get to that stage and before setting down hopefully in the new final home but we can't confirm or any of that for the next year until the end of the year.  I'm going to be tentative about moving in this time next year, ready for the new place. 

What next?

My plan for now is to take each task that makes the future safe and secure for me and my family. As I know that the future can be very uncertain yet I can make it as safe as I possibly can. That is all I can do for now.

 

December and what it has in store for me?

It's the final month of the year. Quiet often it's a crazy one, getting ready for Christmas.

This is the final month of a bit of space before the year of transition yet again. This year has been amazing in so many different ways.

There has been some problems with the world. What with the pandemic and the way it's still effecting the world in so many ways. 

A lot of things however going, back to normal, as I have mentioned in many of my other posts such as When change is coming and Moving on. 

Yet recently my brain has decided to almost shut down. I think that's because there's been so much going on that I haven't been able to really deal with things on a daily basis. And so my brain was in so much a disarray.

I have had to plan so much ahead for the future, because things are still up in the air despite being safe for now. I wish to be able just live from day to day rather than have to plan so much ahead. And that is something that I needed because there's only something's that I can plan, but not everything.

What do I think December has for me.

I am hoping that this month can be be a semi restful month with good memories for me and my family. As well as Christmas presents and time with outside members of the family that I don't often see throughout the year.

What do I want from December.

I really want this month just to be a peace and quiet so that I can just live from day to day because of my disability. And get ready for the next year and the future ahead.

What I don't want from December!

What I don't want is a month of stress and anxiety before the new year ahead. So I can manage everything going on in the new