AFew Months!

It's been a few months since I moved into my final home. I had given myself a bit of time to recover from the amount of stress, uncertainty and energy that I have used over the last 14 months with all the moves.

Having multiple conditions and moving is probably more stressful than just moving. Which is stressful in itself.

There are many things which I never thought about growing up with the main condition cerebral palsy which I spotted in my 1st move. But never thought of it until moving into the final home.

Here are some tips to make the transition smoother:

Involve the person with cerebral palsy in the planning process as much as possible. This will help them feel more in control and invested in the new home.

List any accessibility needs to be addressed in the new home.

This could include wider doorways, bathroom grab bars, or a lower kitchen counter.

Start unpacking and setting up the new home one room at a time.

This will help to avoid feeling overwhelmed.

Familiarise the person with cerebral palsy with the layout of the new home.

This will help them feel more comfortable and independent.

Be patient and allow plenty of time for the person with cerebral palsy to adjust to the new home.

Some tips can be done during settling into a new home. The biggest one I discovered in the last home as I got used to the layout of the place.

As an ambulatory wheelchair user, there was one major thing I was suffering in the first month and that is to use my home helper trolley that I have for transferring from one room to another. So that I could adjust to the different surfaces of certain rooms and areas.

My kitchen, hall and bathrooms are laid with lino

and the living room and bedrooms are carpeted.

I'm still struggling a little bit three months on but I'm getting better. I know that it's ok and I know that I will get used to the house and area. I still walk gingerly around some places as I don't go out as much as I did before.

A longer wait than I thought!

Why am I writing now?

The reason I am writing now is because there is a longer waiting period than I had thought or had hoped for. I wanted to explain why I haven't written for such a long time.

What has been happening?

I had thought we would have moved by now but that isn't the case. The local council has very limited housing and because the needs I have the number of homes are reduced even further. This has made things very stressful. I know that it's the right decision even though the timing is off in my opinion.

What's the plan?

For the next 6 - 8 weeks it is a waiting game. The reason is because of where we are now. Most of our stuff is packed up in boxes ready to go. We were to be leaving in late November. However, that did not happen. Then we had thought that maybe mid December like the previous one a couple of years ago but that's not happening either! Now we are not sure when exactly or where. Yet it will be within the next 6-8 weeks. This means that we are where we are for the holiday season. 

Feelings about it!

There's so many different types of feelings going on within me and the family as a whole. The feelings include the following.

• Anger
• Frustration 
• Worry
• Annoyance
• Acception 
• Excitement
• Happiness

All of these feelings are felt all at once and individually. Throughout the day and sometimes at night. Meaning that I find it difficult to get to sleep.  

All of these feelings are normal, I know. Yet they can really disrupt me.

Why?

This is because they turn my attention to them rather than what I want to do, which is either writing, recording my radio show or spending time with the rest of the family.

The meantime!

During this time I won't be writing much if at all during this time as boxes are everywhere and making me unstable. So I am just sitting, watching TV, reading, listening to podcasts, audiobooks as well as slowly getting ready for the move. And doing lots of self development stuff as the cerebral palsy has many secondary problems. Some of them are mental health issues and others are physical problems that have occurred over time. These include for me the following:

1. General anxiety disorder.
2. Clinical depression.
3. Panic attacks.
4. Bone damage.
5. Arthritis.
6. Post impairment syndrome.
7. Bone disfigurement.

Some of these have been life long and some of them have been arriving the older I get. These include:

• Bone disfigurement
• Arthritis 
• Post impairment syndrome.

What does this mean?

For me this has meant that with the stress of everything regarding the move has meant that my moods and physical ability has been restricted as I have either been trying to help pack up again or felt so awful that I have not been able to do anything.

What's next?

So while I am staying relatively quiet except on Instagram @sweetestmoonuk where you can find me daily.

Moving on

 Right Now

I'm writing this because I haven't had much to say recently. I changed provider for the blog and life has got in the way.  Using some of the older posts and certainly cerebral palsy has played a lot in my life. And it will for the rest of it. 

Many people think that it is some kind of disease that is contagious. It is not possible to catch brain damage. I talk about it in Life with Diplegic Mixed Cerebral Palsy

Although my case is fairly mild there are so many different aspects of my life that it dictates long term decisions. Not just the short term ones.

For a long time, I have been trying to support myself and my family while doing things that others are doing.

This includes network marketing and multi-level marketing. While living in a place that we have outgrown as a family. I have personally been struggling to cope while living in it. So my health mentally and physically has suffered badly. I decided that I should go back to what I love which is blogging and writing.

What's Next. 

At the moment, we are in a sort of limbo, while we find somewhere that is more suitable for the whole family. And we can't wait for the actual move and start moving on to the future more positive than it has been. 

While We Wait

So while we house hunt I have learned a new hobby and loving it so far as well as learning how to use a new system for my blog. Which is a good thing as I want to educate people.

Have there been any changes? That has meant that you have had to make big changes to your life? 

I'd so love to hear what they are. 

Love and Peace 

Xxx

So Much freedom

 

I can't wait to put out more book reviews. It is so freeing.

Since focusing more on my blog I have been able to focus on more books that are for pleasure.

So although my last review was a self-help book in the post I really enjoyed it. 

I chose the book because there were both aspects of education and pleasure. I think books should be for pleasure but also for learning. I know that when I was at school studying for my GCSEs I hated reading.

I was only reading books that were for my exams and nothing for pleasure.

Again I felt like that while reading business books when I was working in Multi-Level-Marketing or Network Sales.

I know that they were important to read to help me grow as a business owner but I prefer to read for pleasure.

Right now I am in the process of reading a new book to review which will be out soon. Unlike the last book, the book I am reading at the moment is for pleasure.

I like a lot of different genres such as crime, mystery, biography, history and many more. And I love reading different authors and new ones although I have my favourite writers. These include Terry Pratchett, Sir Arthur Conan Doyle and Agatha Christie, just to name a few.

I would love to know who your favourite authors are and see if there is someone I haven’t read yet. Tell me what your favourite book is? And I will see if it is something that I have not read. Then maybe I can read it.

Let me know what you like

Love and Peace

Xxx

Moving Forward: Its Not as Difficult as You Think!

 Things are changing yet again things are in limbo. That's ok and yes Covid19 is still here. That's not ok but we are getting through it.

Unfortunately, some changes have taken effect. For Example, having to wear a mask on buses and on public transport.

These changes have already been taking place particularly in China and Asia. As if people have colds they wear masks out of courtesy for the other people in the towns or villages where they are.

So these things are happening here in the UK. Closer to home things are also moving forward and it is exciting! There has been a bit of stagnation waiting for things moving but that is ok! Moving forward isn't that hard if you try to take each day at a time. I am learning to do this. I have no proper routine as per se because of my disability but that's ok. there however things that I have been doing daily not necessarily at the same time.

• Watch positive GoalPost videos
• Listen to the news 
• Socially say good morning to people
• Get ready for the day.
• Say happy birthday to people online.
• Watch a few episodes of my favourite tv shows while brainstorming in my own head.
• Take a couple of social photos ready for my social media.
• Read a book that I'm interested in

And I am ok with that because I know at least it's being done. I know I did a post on Being trapped in the house about time blocking for routines and I know I have written other posts about this too and I learned that because of my disability my time blocking is different to most people and it is up to you how you actually do it. 

Remember there are things are changing but try to stay positive. Blocking my time has really helped even though there has been a lot of challenges throughout there are difficulties because of the virus. Love and Peace  Xxx

Moving forward! a different way for me!

 I'm writing this by using my voice as it seems to be quicker so that I can get more written up in a short of time for what I want to talk about because of my disability and my feelings of depression.

This post is just going to be about how I've been feeling properly over the last couple of months I wanted to make sure that the disabled people were being noticed generally in the public eye not just hidden away and ignored because of problems. Not astigmatism in the sense of people. However, it is not working so well talking about how the way I feel because of the way things have been regarding my disability and frustrations and I know that life will change in the future.

but I don't want to I want to be as normal as possible and it's not always possible to.

I know that I have a limited time with the ability to walk, that's not much longer and will end up in a wheelchair. which is not what I want, but it is what will happen if I'm not careful.

So l when I decided to write this out today. I decided that I’d rather do it quickly via voice typing rather than type exactly what I'm saying until I've finished what I wanted to talk about.

Because I wanted to

mentioned in another post and that is my day-to-day feelings of depression blog. it's not nice all the time. it has a positive side of things because I can write more often, quickly and that I have no criticisms from the other people who I would generally consider as high-end bloggers. however much I would like to do it as a job and just what I'm trying to do I'm not doing it in the considered normal way because of my disability abilities and so there are days I do and there are days when I want to just curl up and not do anything. I would rather than not do anything I've decided to a daily blog on Tumblr. And put my actual thoughts out. Whereas this is just going to be a summary of what has been going on because this is something I haven't thought was viable for this website. Because it's not saying everything but maybe I should do more about that, or not, I haven't got a clue. I will be going to this in more detail possibly in more posts. other than I am going to start typing out this way because it's a lot easier for me than spending hours every day typing up. I can just think about what is being said and added directly into my post before editing it and getting ready to be posted and up on the site. it also means that I will be able to deal less. Because I can say what I want and not just type what I'm thinking using complicated words and using less complicated words so much I would do and pass it through and edit it making sure that it's for people who understand what I'm talking about and having complex needs with my cerebral palsy. I have made it very difficult at times to write and say anything in the actual blog without feeling awful.

So this is another way of doing it yet quickly. Doing short posts on Tumblr seme easier than the other way for me.

The conditions I have got with the condition is clinical depression, g a d which is, general anxiety disorder, endometriosis and arthritis. A lot of the time I'm I'm not feeling like I can say anything positive about my disability. it's this frustrating me it's making me feel like I can't do anything and I began to post today on my Tumblr post log because of the way I was feeling and it can be quickly written. And this can't be. Because it needs to be formatted in a way that people can understand what I'm talking about. I'm learning to collaborate because it is making it easier. I will put it in a section for the website so that it can be got at privately by someone if they want to read this one rather than outright public I want to give us much as I can for free about disability yet I want to be able to earn a little bit. I again do that to improve my podcast, my vlogs once a week and my blog.

I have been testing it, seeing how much I can get written up rather than typing. It does make it a lot more easily use for me to do. I will be thinking about typing this quickly each day and putting more out by this way and if I don't use Google, directly for it then I will be using otter.ai which is another format for my website. That I use when I do the vlogs, audio for my podcast, before the written version which I put on my blog.

So far though this has been the best way to get what I want to say rather than typing. Because I'm able to keep up with what I'm thinking rather than having to stop and type everything. Mentally it is a freer way of saying something rather than having to type and it makes it a lot easier for me and the less stressful, mental deadline for each post I write.